Frequently Asked Questions about Oral Cancer
1) Questions about Cancer Testing
1. What tests will I have?
You'll undergo imaging tests like CT scans, MRI, and possibly an endoscopic ultrasound, along with blood tests and biopsies.
2. Do the tests have any risks?
Most tests have minimal risks, such as slight discomfort or bleeding from biopsies, and low radiation exposure from imaging tests.
3. Do I need to do anything to prepare for testing?
Preparation may include fasting, avoiding certain medications, or arranging transportation if sedation is required.
4. Should I bring someone with me to the appointments?
It's a good idea to bring someone for support and to help remember information given during the appointment.
5. Where do I go for testing, and how long will it take?
Tests are usually done at a hospital or specialized clinic; the duration varies from a few minutes to several hours.
6. If any tests will hurt, what will you do to make me comfortable?
Pain relief options, such as local anesthetics or sedation, will be provided to ensure your comfort during painful procedures.
7. How soon will I know the results and who will explain them to me?
Results typically come within a few days to a week; your doctor will discuss them with you during a follow-up appointment.
8. How can I get a copy of the pathology report and other test results?
You can request copies from your healthcare provider or access them through the hospital's patient portal.
9. Is there an online portal with my test results?
Many healthcare facilities provide online portals where you can view your test results and medical records.
2) Questions about Treatment Options
1. What are my treatment options?
Options include surgery, chemotherapy, radiation therapy, targeted therapy, and participation in clinical trials.
2. Is a clinical trial an option for me?
Your doctor can determine if you are eligible for any clinical trials based on your specific condition and medical history.
3. What will happen if I do nothing?
Without treatment, the cancer will likely progress, leading to worsening symptoms and potentially decreasing survival time.
4. Are you suggesting options other than what NCCN recommends? If yes, why?
If alternatives are suggested, it's due to your unique case or new advancements in treatment not yet included in guidelines.
5. How do my age, sex, overall health, and other factors affect my options?
These factors influence your treatment plan, as they can affect how well you tolerate and respond to certain treatments.
6. What if I am pregnant, or planning to become pregnant?
Treatment plans will need to be adjusted to protect both you and your baby, and may require coordination with a specialist.
7. Does any option offer a cure or long-term cancer control?
Surgery offers the best chance for a cure if the cancer is localized, while other treatments can help control the disease long-term.
8. What are the side effects of the treatments?
Side effects vary but can include nausea, fatigue, hair loss, and increased risk of infection, among others.
9. How do I get a second opinion?
You can request a referral from your current doctor or contact another specialist directly for a second opinion.
10. How long do I have to decide about treatment, and is there a social worker or someone who can help me decide?
Your doctor will provide a timeline for decision-making; a social worker or patient navigator can assist you in making informed choices.
3) Questions about Side Effects
1. What are the possible complications and side effects of treatment?
Side effects depend on the treatment but can include infection, bleeding, organ damage, and long-term health issues.
2. Does the cancer itself cause any side effects?
Yes, pancreatic cancer can cause jaundice, pain, weight loss, and digestive issues.
3. Which side effects are most common and how long do they usually last?
Common side effects include nausea, fatigue, and pain; duration varies by individual and treatment type.
4. Which side effects are serious or life-threatening?
Serious side effects can include severe infections, bleeding, and organ failure, which require immediate medical attention.
5. Are there any long-term or permanent side effects?
Some treatments may cause long-term effects such as diabetes, digestive problems, or nerve damage.
6. What symptoms should I report right away, and whom do I contact?
Report severe pain, fever, excessive bleeding, or signs of infection to your healthcare provider immediately.
7. What can I do to prevent or relieve the side effects of treatment?
Follow your doctor’s recommendations, maintain a healthy lifestyle, and take prescribed medications to manage side effects.
8. Do any medications worsen side effects?
Some medications can exacerbate side effects, so inform your doctor of all medications you are taking.
9. Do any side effects lessen or worsen in severity over time?
Side effects may vary, with some diminishing as your body adjusts to treatment and others potentially worsening.
10. Will you stop or change treatment if there are serious side effects?
Treatment plans can be adjusted or halted if side effects become too severe, prioritizing your safety and well-being.
4) Questions about Clinical Trials
1. Do you recommend that I consider a clinical trial for treatment?
Your doctor may recommend a clinical trial if it offers a potential benefit or new treatment option for your condition.
2. How do I find clinical trials in which I can participate?
Your healthcare team can help you find suitable trials, or you can search online databases like ClinicalTrials.gov.
3. What are the treatments used in the clinical trial?
Treatments vary by trial and may include new drugs, combinations of existing treatments, or innovative therapies.
4. Has the treatment been used for other types of cancer?
Some treatments may have been tested on other cancers, providing insights into their effectiveness and safety.
5. What are the risks and benefits of this treatment?
Risks include unknown side effects and outcomes; benefits may include access to cutting-edge treatments and closer monitoring.
6. What side effects should I expect and how will they be managed?
Side effects depend on the treatment and will be managed with supportive care and medications as needed.
7. How long will I be in the clinical trial?
Trial durations vary, ranging from a few weeks to several years, depending on the study's goals and treatment protocols.
8. Will I be able to get other treatment if this doesn't work?
You can pursue other treatments if the trial is ineffective, and your care team will guide you through the options.
9. How will you know if the treatment is working?
Regular monitoring through tests and assessments will determine the treatment's effectiveness.
10. Will the clinical trial cost me anything?
Costs vary by trial; some are fully funded, while others may have associated expenses, which will be clarified beforehand.